As the future of our healthcare system moves towards electronic healthcare records, we need patient data ownership rights to protect patient care.
1. Patients co-own or fully own every health data point about themselves.
2. Health data generated about the patient by a provider is co-owned by both parties.
3. Health data generated by the patient is fully owned by the patient with a right to possess, share, sell, or destroy.
4. All uses of a patients' health data shall be consented in advance by the patient, other than uses required by law.
We've mapped out the needs for owning your health data and have illustrated them to be digestible for policy makers and the general public. If you have any feedback, please share with firstname.lastname@example.org.
GoInvo is a healthcare design company that crafts innovative digital and physical solutions. Our deep expertise in Health IT, Genomics, and Open Source health has delivered results for the National Institute of Health, Walgreens, Mount Sinai and Partners Healthcare.